Jill "xtingu" Knapp

Traveling musician. Singer. Road warrior in bursts. Dork. Easy to spot. Gauche eyeshadow fan. Unreasonably happy.

  • Followed
  • Follows you

Edit biography

I wrote this maybe 10 days ago.

I forget where I left off, but I was living full-time in NJ at my folks' place from 2/8 to 2/28*.  Most of that time I was away from Matt because he was working in Maryland, music directing a show.  It was a really hard three weeks.

(*which does not include the 5 then 6 days in January we were up there, too.)


One of those February weeks my dad was in the hospital, so with my Mom's routine disrupted she was extra spacey. Once Dad came home, things slowly returned to normal, but Dad was really struggling with the fact that for the first time he wasn't just *bing!* back to normal. He is not used to feeling weak and needing help.

Anyway, Dad had a bowel obstruction, and thankfully the surgical fix didn't require a bowel resection-- instead there was just a weird piece of string (made out of a strand of scar tissue) that strangulated his guts.

Didja ever cut a raw, boneless chicken breast and there's that weird white tendony-gristly thing that kinda goes through a 3rd of it?  It looked like that.  So the doc snipped it, and in one second my dad went from Guy In Agony Who Could Not Breathe And Wanted To Die to WHEW SWEET RELIEF.  They waited six days before they operated, hoping the obstruction would just kinda clear itself, but after Day 6 they realized they needed to get in there. Three teeny laparascopic incisions and a snip later, and he was fixed up. They watched him for 2 more days and then released him.  

(Side note to Jeremy Moskowitz  and Matt Lichtenwalner : Remember that time in either 2006 or 2009 (I can't remember) when we went for Indian food someplace on Kirkwood Highway and I had to go sit in the car in the middle of the meal, and when you came out I was inconsolably wailing and screaming bloody murder in the back of the car, and you guys took me to the hospital? That was a bowel obstruction. Dad had the same thing. We're built weird, I guess.)

Problem is that while Dad was in the hospital, they stuck a naso-gastric tube down into his gut and pumped his stomach for 6 solid days, to relieve the pressure building behind the obstruction in hopes it would clear itself. During this time he wasn't even allowed to have ice chips, let alone any food, broth, water,  nada.  After the surgery they continued to pump his stomach so he could heal up, so for a grand total of 8 days he didn't move, eat, or drink anything.  He was a withered shell of a guy.  We were afraid he'd never regain his strength or confidence after that.  Once they sent him home, it took him about two weeks of constant care by yours truly, but by February 28th he was back to about 87% strength, which was enough for him to tell me I could go home, so I could do a gig on the 29th.  (Gig was great. More on that later.)

Mom continues to be on Planet Mom. Her dementia is fascinating, honestly. If you talk to her, you would have no idea anything is wrong. She is funny, normal, on-task, quick-witted, well-spoken, patient, friendly, sweet, knows all of her stories and recipes, all that.  It's just that 5 minutes later she won't remember that you had that conversation.  So she'll go to a doctor and will sign in perfectly, will be friendly, will make eye contact, and will tell people things that sound totally reasonable... and 50% of the time she's right.  But while my dad was in the hospital I had to take her to a GI appointment, and she told her GI doctor that she was the one who was in the hospital for a week... and the GI doctor dutifully wrote it down in her chart, because it sounded totally convincing. I had to gently say, "Mom, you weren't in the hospital; Dad was."

"What now?"

"Dad was the one in the hospital, not you. He's still in there now with a bowel obstruction."

"What? Did I say I was in the hospital?

"Yep, just now."

"Was I in the hospital?"

"Nope. I mean, you visited Dad, but you weren't the one being treated."

"Oh. Hmm. ((chuckle)) Well, that's old age I guess."

The GI doc was puzzled listening to us have this exchange. On the way out I popped my head into his office and asked him to please make a note in her chart that she's got early-stage dementia, and to please make sure someone else is in the examination room with her, because otherwise we can't be sure if she'll be giving accurate information. And also, she won't remember any instructions you give her.

Fast forward three weeks later, where we had a follow-up appointment with the same GI doctor. He now sees in her chart the note he wrote-- "patient has early stage dementia."  I am in the examination room with her again.  As he prescribes her antibiotics for something, he looks at her and says loudly, "Now don't forget that you have to take these for 10 days. Don't forget, now!"

Right. Because those are the magic words that make dementia patients miraculously remember shit.  Fucking idiot.

(And no, that wasn't his way of making sure I was paying attention. Trust me on this one. He just doesn't get it.)

She's like a computer with a bad hard drive. If something was written to hard drive before 2017, she remembers it perfectly. Post 2017, it gets glitchy. Starting around Thanksgiving 2019, it's RAM only.  


Anyway. While I was up there, I did not think I would ever be able to come back to DE.  I had several private, epic, Oscar-worthy meltdowns... and in the twitchy aftermath of one of them, my brother picked up on the fact that I wasn't doing so well and he suggested that I go home to DE for one night, sleep in my own bed, attend a Sunday rehearsal that I didn't think I'd be able to attend, and then head back up to NJ afterwards, and he'd watch my folks for that time.  Those were a sweeeeeet 20 hours, I'm not gonna lie. It's amazing how much one can recharge in a short amount of time. Everyone at rehearsal was so, so, SO lovely and supportive, and genuinely asking not only how my folks were doing, but how I was doing. This was weird for me... I've never really been the one who needed a supportive hug; I'm the one who gives them. I didn't even know that many people even knew about my parental situation. I felt really loved and cared for, by people I didn't really think ever gave me much thought. 

While I was in NJ, I contacted 41 home health agencies to lend my folks a hand... and only TWO serve Warren County (the ass-end of cow-town NJ where they live). One agency had caregivers that live in Newark, which is about an hour away from my parents. Generally speaking, Newark folks don't understand country life, they don't understand deer and bears and how your nearest neighbor is a cow a few acres away. They also don't drive generally, so when we tried one caregiver we had to pay a $68 Uber ride each way for them. How would they be able to give my parents a hand if they can't even drive?  So they weren't a good fit.  But the other agency, Home Instead Senior Care, is based about 8 miles from my folks, and their caregivers live in the area. They understand the ways of the cows. After some shuffling and scheduling, we now officially have Wendy the caregiver spending 3 days a week with my mom for 4 hours at a clip. This basically frees up my Dad to turn his brain off so he can putter in the garage, go have lunch with the guys, snooze, pay bills, whatever. Wendy makes sure my mom is entertained, fed, takes her meds, helps with meal prep, can take her to get her nails/hair done, take her to doctor appointments, etc.  It's a huge relief.  Of course now with all of the COVID-19 lockdowns, I'm not sure how long this will last... but I'm comforted that at least for now there's an extra set of competent eyes making sure she (and Dad) aren't experiencing any symptoms. 


Now we're home. I'm writing this part on 3/15/20 now.

So anyway, I've been home since March, and I've mostly been hermiting. Like, pretty much staying in my PJs, leaving the house only when absolutely necessary. I've been doing a decent amount of voiceover work, and 

On Friday March 13th, Matt's Ramones band had (53rd & 3rd) a gig at Oddity Bar, which was comfortingly bleachy, and not very well-attended due in part to collective nerves, and the Delaware State of Emergency which didn't make ir clear if folks should stay home. We were all OK with the attendance, honestly. The 25-ish folks who did attend really wanted to be there, and we all amused ourselves coming up with silly, inventive ways to greet each other without shaking hands or elbow bumping. Everyone tipped the bar-staff very well, knowing they had it rough. Some of us even ate at the Chinese place next door and overtipped there, too. 

In other news, the stores have been busy but not nuts, and fairly well-stocked. They were out of bleach, hand sanitizer,  and rubbing alcohol, and low on bread, but nothing we couldn't work around. (Besides, we already had bleach and rubbing alcohol on hand Because Adult, and also Because Burning Man.)  We feel prepared for a week or two (or  of isolation if it comes to that.

I bleach-washed the bejeezus out of the kitchen floor and the entire master bathroom, so I feel like I've accomplished something. I'm hoping my burning lungs are from the bleach and not a symptom of COVID-19. 

Anyhoo, there's more to tell, but this is already hella long. 

As a reward for reading this long, blathery post, please enjoy this delightful thing by making with the clicky (fixed link!):

MORE
Everything is beautiful, isn’t it?
I can’t imagine your stress. I’m glad you’re back at your home.
Thanks, m'dear. Very glad to be back home... though the guilt is pretty overwhelming at times. Trying to just stay present and breathe, y'know? 💗

Love to you guys.
I can see Derren Brown, but was there a particular tweet you wanted to share?
Weird-- not sure why the link isn't working. When I edit the post it's fine, but once I post the post, it just takes you to Derren's profile and not the tweet.

Anyway, I think I was just able to fix it now.
BRILLIANT!
RIGHT?!
Super glad Dad's back on track and that Mom's got additional help so he can get some peaceful Dad time. Also, that Wendy knows the ways of the cows, because yeah.

Most importantly, I'm glad you've got your life back. When this pandemic is over, I'm very much looking forward to catching up.

Love you and love to the folks.
Glad your back and rebuilding your spoon inventory. Offer still stands, if needed. Don't be a martyr.
 

Here are some random links I have saved for things I found cool or interesting:

1) Sean Ono Lennon's band, GOASTT, and their song "Animals." The video is also mesmerizing. It is clear that he is the son of two brilliant artists. If anyone's gonna have an unlimited bankroll to create art, I'm happy it's him. (GOASTT stands for "Ghost of the Saber-toothed tiger.) NSFW (bewbs).

2) Lizzo's Tiny Desk Concert. She has an impressively filthy mouth, but she makes it so endearing. And holy craaaaap does she have chops! She is unfathomably cute and quick-witted, and so comfy being in the spotlight. NSFW (language).

3) If you don't have time for the Tiny Desk Concert above, enjoy Lizzo's hilarious 3-minute parody of Anchorman. She's such a star, and her comic timing is perfecto. (I love the idiots in the comments saying "Um, she's not playing the flute here." No, really? She's not actually playing the flute when it has flames shooting out of it? You think that might be lipsynced? Thanks, Mozart.)  NSFW (language).

4) The "Satisficing" subreddit, containing gifs and videos of cake and cookie icing and piping... so soothing, so magical. It's visual xanax. 

5) The New Voice Studio run by Lisa Paglin and Marianna Brilla. I would give a kidney to study there with them... good GAWD. They say everything I have felt over the years, and I wanna go there and learn every single thing in their heads. Oh lordy lordy lordy lordy. After I win the lottery or something. The YouTube video on their home page (ya gotta scroll a bit) speaks right to my soul.  (A zillion thanks to Michele Grant for indirectly turning me onto them via this article about Adele and other singers blowing their voices out only to have miraculous vocal surgery performed on them, only to have them blow it out again, because they never fixed their shitty technique.)


Parent Update

In other news, we just visited my folks and had a really great visit. Everyone was chipper, we genuinely all enjoyed the visit, we went out to eat, etc.

It's pretty clear that my mom is mentally slipping... her short-term memory is really going bye-bye. She forgets to play the bills, and gets lost driving pretty consistently now, so my dad now handles the finances and drives her everywhere now, which I guess is not the end of the world.  But other than occasional short-term forgetfulness (she watched me and Matt eat english muffins; about 20 seconds later she asked if we ate breakfast even though she was looking at our plates, and she even took a bite of one of our muffins), she is pleasant, fun, on-task, engaged in conversations, and overall pretty OK. My dad is terrified, OTOH, and exahusted, of course, because he has to stay on top of everything... so it was nice to give him a little break.  Her blood-sugar is also considerably more under control, which is awesome. She looks and feels better, and she says she has more energy.  Her diabetes doc (the one who was delaying approving her  much-needed knee surgery because her blood-sugar numbers were too high) now says he'll approve the surgery in 3 months if she keeps up the good numbers.  The sad irony is that in 3 months she'll be that much farther gone mentally, she won't be able to enjoy her new knee and the freedom it affords her due to her cognitive decline. Dad worries with a fixed knee she may even wander on foot. We'll cross that bridge when we get there.

This all sounds grim, but I'm still strangely optimistic.


MORE
8/19 '19 6 Comments
I'm glad your mom is cheerful and pleasant. Lizzo makes me so stinking happy.
OMG I love this! Hahaha!
Thank you for the r/SatisfIcing link. I use videos of relaxing things like icing cakes and other soothing activities to fall asleep to and it is very much visual xanax for me! Here's a link in return: https://www.youtube.com/watch?v=2xrlaJ8egzs&t=329s (SFW) I kill the sound, personally.

Glad your time with family was wholesome and less draining! Sometimes things just click with everyone, and it's a good day. XOXO
Karen Kuhl 8/21 '19
Haven’t checked out the links yet because I’m at one of my coffee shop stops, and I don’t want to be ‘that guy’. Will later.

Over the moon to hear that things are (at least generally) better with your Mom. Of course, I’m sorry that the mental state puts more on your Dad. Though, if someone there can handle it...

I’m also super hopeful for something that you didn’t mention, so perhaps I’m missing a detail. With increased physicality, her mental acuity may improve. Exercise is great for the mind, as my stagnant and lethargic lifestyle proves. (I no can brain these days.) So... hopeful(ish?)
I have been thinking about your mom a lot. I am glad she is doing so well, all things considered. My mom had wanted to visit her if we ever got back to NJ. I agree with Matt L. - if she can get a little more movement in, it could make a lot of difference. You may also want to play cards with her or do other activities that exercise the mind. Every little bit can help.
SFM 9/11 '19
 

We've been at my folks' place since Sunday. Dad had carpal-tunnel surgery on his wrench-turnin' hand on Monday, and he was very worried about how it was gonna go. If he can't use his right hand, he might as well check himself into the rest home, since fixing cars and building stuff (and caring for my mom) is what keeps him alive. 

The good news is that the surgery went smooove like buttah, and 10 minutes after he got home he made himself an omelet with his bionic hand... so he's fine. Now that he's a few days out his fingers are a little black and blue, but it's really all good.  Today at 2:45 we take him for his post-op follow-up, and then we'll head back home. 

We have this rhythm here at my folks' place where my parents get up early (around 7) and fix themselves some coffee and a small bite. It wakes me up, but I stay in bed snoozing. I They are so sweet and kind to each other in the mornings, and it makes me happy.  Then my mom goes back to bed, and my dad goes out to get coffee and bullshit with the guys at Steve's Transmissions for a few hours, and he gets home around 11. By then Matt gets up and brings me a cup of coffee in bed because he is the best, and then he hangs with my folks a bit while I build up the courage/strength to put on pants and go out to the kitchen with everyone. By this time my folks' morning sweetness has worn off and they're both back to interrupting and my dad answering for my mom and then my mom getting defensive and my dad not understanding why she's suddenly pissy and then I explain Communication 101 and then a lightbulb goes off for a moment until they both find it easier to deem me too preachy than it is to try changing how they talk to each other.  

So I'm still in bed at 11:58am. I need to get out there and I don't wanna. 

Anyhoo.

I have been go-go-go since the end of October, as companies are rushing to spend their training budgets so they don't lose them for next year. I've had classes in TX, Denver, Philly, and then I took a class in DC, then we went to CT for Thanksgiving, then we had a gig in West Chester on Saturday, and then we left for NJ (here) the next day.  I haven't had a day off in a while, and I need one.  The emails are piling up (work emails and friendly emails) and I haven't had much time to even read them let alone reply. If I owe you an email, I promise I'm working on it. 

Next week (Dec 3-6) I teach a class at UPenn again, and the following week (Dec 10-13) is another class that I just don't feel like teaching since it's the week before our big Christmas Show (which is on the 15th), so I'm having my pal Joyce teach it. We're gonna be building sets and rehearsing and panicking that week, so there was no way I could be away for the week. With Joyce teaching the class, I'm not making as much on the class as I normally would since I have to pay for her airfare, hotel, and instructor fee, but I'll still make something, and something is better than if I had just turned the work away and gotten nothing.

I have a ton of other work to do and no desire to do it... I'm not sure if this is some low-level depression, the start of the winter blues, or just general laziness. Probably some combo thereof.

In other news entirely, a few weeks ago I was taking a class in Washington DC and I took the train down. DC's Union Station has a bunch of mall-esque stores in it, and I was worried I was gonna be cold as I walked to/from class, so I popped in a store I'd never heard of and bought a warm undershirt for $19.00. And now, I have a new fucking addiction... these HeatTech bra-top undershirts by Uniqlo. Most bra-top undershirts have a totally useless shelf-bra, but these things have this kinda combo shelf-cup configuration that HOLY BALLS actually handles my mutant titties better than any other actual bra I have ever worn.  Going from a 40DD to a 32-Pfffft is impossible to fit, and these things work (they actually work!!), praise jeeeesus!  I bought a bunch more, so I pretty much haven't taken one off since November 13th... and ta-daaa. I am comfortable and warm (and perky!) for the first time in well over a decade. 

Perhaps that is TMI. Perhaps I don't care.

It's my blog, and I'll TMI if I want to. :)

Ok, time to get motivated. Bleh.

MORE
11/29 '18 8 Comments
Winter blahs, I prescribe a full spectrum light in your work space. At the minimum a daylight spectrum light. It makes a huge difference in my mid-winter demeanor.

I was up in central Massachusetts for the holiday and holy balls, a couple hundred miles northeast and you notice how much earlier the sun goes down up there as opposed to in Philadel.

And yes, TMI. But you be you. I now know more about the state of your chest than I ever did before, or am comfortable knowing. #nerdworldproblems

And if you haven't taken off a shirt since November 13th, perhaps it's time to give it a rest and maybe launder it.
Ray Conrad 11/29 '18
I've been meaning to get a full-spectrum light for a looong time, but just... haven't. Perhaps I shall Amazon One-click one into existence. :)

And dooood, I shower with this undershirt/bra on, so IT'S CLEAN, OKAY? (I kid.)
(googles "heat tech bra top undershirt uniqlo")
AAAAA-LEE-LUU-YAH!!!
I have the opposite of your boobs. My bra size is 40 A.72 or something. I buy 40 Bs with push-up padding, so there's extra mass inside the cup, so the bra will fit. I would buy 40 As. They don't exist. I will buy damn near anything that has padded cups. Did you get the one with camisole straps or wider straps?

So this one time I was at a Barenaked Ladies concert at the Spectrum (RIP), and people were throwing their bras onstage. It was New Year's, so Steve and Ed would take the bras and put them on the Christmas tree upstage. It was a very polite crowd, so bras were being passed via the crowd to the stage. Every time a bra made it to the front, Steve or Ed would bow in thanks, and add it to the tree. I happened to be wearing a leopard print bra that I didn't hate, but wouldn't have shed tears if I never saw it again, and I was considering trying to get it passed up to the stage. Then a huge burly bearded guy in the front row passed a bra to the stage, and Steve did a double take and asked, "is this yours, sir?" Then Ed said, "What size is it, a 40 A?"

I decided not to participate.

Digression is the better part of valor.

Glad you're taking good care of your folks. Fist bump of solidarity.
Ahhhhh yes, boob-shame. I know it well.

Remind me to tell you about The Summer I Went Crazy and had a one-night stand with a guy in Philly and the boobs of shame. Let's just say my Victoria's Secret push-up bra did a wholllllllle lotta false advertising, and the let-down was SO AWKWARD and AWFUL. (Oh. Looks like I just told you.)
OMG I now have to email you. I remember ALL boob conversations we have ever had.
I'll have to check out the bra-top undershirts. My man boobs are getting out of control with your run of the mill bra.

(Thrilled beyond words to hear that Dad's bionic wrench turnin' hand is fully function.)
Hahaha! It's a "Bro" or a "Manssiere." (Thanks, Seinfeld!)
Great news about your Dad!
Also I love that you get the chance to hear your parents being lovely to each other.

Xoxo
 

The thing I teach is this thing called "ITIL" which is basically a set of books that give you ideas on how to make your IT department suck less.  When I teach what's known as an "ITIL Foundation" class, I'm basically giving a 3-day lecture on the highlights of these books (kinda like a live-action Cliffs Notes), and then I proctor the official Certification Exam that "proves" that people remember the highlights and major plot points of these books. 

When these books first came out in 1989-ish, they were a set of 31 books. They were revised in 1999 and they shrunk down to 8 books (though they added a 9th one later) -- that was called "ITIL v2," and then in 2007 it became 5 books ("ITIL V3"). In 2011, they did a teeny little update to the five ITIL V3 books and there was confusion in the industry as to whether it was still called "ITIL V3" or if it was called "ITIL 2011" or just plain ol' "ITIL." But it stayed five books.

A new version just sorta came out in beta, and only instructors have access to this draft version (called "ITIL 4"). Instructors have to be certified in it before we're allowed to teach it, obviously.  The new version won't be officially released until February-ish, and the new ITIL 4 Foundation exams will go live around then.

I'm heading down to Washington DC today because the ITIL Mothership is holding a  Train the Trainer Class on Thursday and Friday... and then Friday afternoon I'll also take the Foundation Exam.  This new version is soooooooooo fundamentally different than any of its predecessors that I am worried I'm gonna fail this exam on Friday... and boy howdy won't that be embarrassing. 

I know when ITIL V2 moved to ITIL V3 in 2007, I was convinced I'd never ever be comfy or fluent in the V3 material... and hey, look at me, I'm considered a fancy-pants subject matter expert and I haven't had an in-person student flunk the exam on my watch since 2009, and people buy access to my online instructional videos and send me fan-mail thanking me for helping them nail the exam. So maybe I'm not as dumb as I think. 

But this new version... man. I read it, and it means nothing to me... and I channel Matt Lichtenwalner ​​​​​​'s friend Don and kinda giggle because all I see are "worrrrrrrrds..."  O_o


In other news, a few weeks ago I had two root canals and one of them turned to the dark side and got infected (yum) so my face blew up and it hurt... so I jumped on 10 days of antibiotics. Those ended on November 5th.

On Monday of this week they had to do more dental work, and now the *other* root-canaled tooth has turned to the dark side. So I'll be on yet another stupid round of antibiotics starting in an hour or so. Sick of this, you guys.  (I swear I brush and floss! I even have a Sonicare and a WaterPik that I use religiously!)  And my dentist is awesome... so I don't know why my teef rebel like this. It hurts, and I look like an idiot with my face all lopsided yet again.  (Perfect for meeting new people!)

It's supposed to be a wintry mix of blecch from DC to NYC for the next few days, and the hotel I'm staying in is about 1/2 mile from the Sofitel hotel where the training is at. (As much as I wanted to stay at the Sofitel, I couldn't justify $800/night. So it'll be $400/night instead at the Hampton Inn... ouch.) I'm not looking forward to walking 1/2 mile in the icy snow to/from class, but I also know that 1/2 mile is just not far enough to justify calling an Uber/Lyft.  So I will comfort and warm my heart by flipping the bird at The White House as I walk directly past it on the walk to/from class each day. 

I am looking forward to meeting my friend Dan for dinner tonight since he lives in DC. He's been my pal since Kindergarten, and he's fucking awesome. We were in punk band in high school together and he is one of those "touchstone" people in my life. Stoked to see him. 

This will be my first work-trip (or any trip, really) in forever where Matt isn't coming with me. I haz a sad. But honestly, I'm gonna be studying each night, so I wouldn't be that much fun to hang around anyway.


In other news, this Saturday night we are playing in a big-ol' tribute to The Who, and I am pretty excited about it.  Good lordy, the song "Slip Kid" is so much fun to play. Plus I'm getting to play trumpet on "5:15," "Drowned," and "The Real Me," and it's a blast.  I can't remember if I've ever performed on The Grand Opera House stage before... it's a 1200-seat theater. I feel like I would have remembered that. *shrug*

Ok, time to get out of bed. (I've been up since 8, but I just like being in bed.)

MORE
11/14 '18 6 Comments
I can't imagine that it's possible that you haven't performed at the Grande. Maybe at the Baby Grande? Dunno.

Anywho - sounds like you're pretty slammed over the next couple of days, but I will be working in DC (or nearby) both days (weather permitting) so ping me if you want to grab coffee.
I gather you’ll have little time, but if you do, pop into the Renwick? (right around the corner from the White House) Also, Air Canada has a pop up Poutine restaurant in DC this season. Also also, Thursday evening Local 16 DC bar has a Broadway singalong. Pop pop pop.
Ursula Sadiq 11/14 '18edited
I’m stressed out for you, just reading this. I have a feeling that once you figure out the pattern, you’ll triumph.
I never have figured out what ITIL is except that "we don't have it" and "we need it."

And you've already taught me something, as now I know it is "ideas on how to make your IT department suck less."
Chris Herdt 11/20 '18
Take a whole bunch of really smart IT managers and come up with a very long list of their best practices for running IT organizations (big and small). Put it through the 'common language' filter so that everyone understands everyone else.

Now distill all that stuff down into something that doesn't take a lifetime to learn.

Voila! ITIL
Matt Lichtenwalner 11/21 '18edited
ETA: ITIL CAN take a lifetime to master, of course - like anything. Ms. Knapp seems to have an uncanny ability in that department. Smart one, she.
 

We were all set to leave for NJ yesterday so we could accompany my folks for mom's 4th attempt at knee-meniscus-repair surgery which was scheduled for this morning. 

She called me yesterday before we got on the road to say that they canceled it yet again... this time because her pre-op testing showed her blood-sugar has been too high, so her endocrinologist wouldn't clear her. 

She is really really bummed. 

I asked what the next steps forward towards rescheduling are, and she said, "I've gotta get my blood sugar under better control, I guess."  I asked her how she should do this-- is it as "simple" as an insulin adjustment?  She said in a defeated tone, "I guess I need to eat better." 

Strange that a diabetic shouldn't be subsisting on dollar-store frozen pizzas, Ritz crackers, pasta, and insulin.  *facepalm*

Anyway, I was happy (?) to hear that her endocrinologist said "Come down today from 3-4pm and meet with our nutritionist, and we'll work with you to get your blood-sugar down. We want you to have this surgery." So she's going there today.  I asked her to ask the nutritionist for meal ideas that are easy and quick because she can't stand up long enough to cook a healthy meal, which is why she eats what's easy. Is there a mail-order meal service that they recommend? I know there are meal services like Blue Apron and Sun Basket, but those require you to prepare the meal yourself, which probably requires some amount of standing.  I also don't think she'd spend that kind of money on herself, but that's a different story... and one Matt and I might be able to solve since her birthday is coming up. Maybe a few months of a meal service would be a nice gift. Or maybe that would be awful and would make her feel judged somehow... I don't know. 

I just wanna help. 

Anyway, we're heading up in an hour or so, and we'll be there until Friday. We've got a real busy weekend coming up with 2 gigs on Friday night and Saturday afternoon, and family stuff on Sunday.



MORE
10/17 '18 9 Comments
There are definitely meal delivery services where you don't have to prep stuff, just heat it! That's a great idea. I forget, where do your folks live?

You could check out:

https://www.cleaneatsmealprep.com/

They seem to cover a wide area. If you wield your favorite search engine and ask for "meal delivery service [state or city or general location]", you should find more stuff. When we lived in California and I was having babies, the local meal delivery services were lifesavers!!

They're NOT generally cheap, but you'll find a range of prices both between providers and within various meals/meal plans.
Anne Mollo 10/17 '18
How did I miss these replies? Annie, thank you so, so much! We're OK with not cheap, as long as she eats it!
In addition to delivery services, I have an idea. I'll text you.
That was super-helpful, beb-- thank you!
Any time!
Healthy Root didn't work for me, because the price per calorie ratio was not what I needed. But, it doesn't require much cooking. You pretty much just dump everything in a pan and heat it up. It's vegan, so I don't know how that works with a diet where you're trying to lower your blood sugar.

Blue Apron was a lot of chopping. Hate to shop, but love to chop? Blue Apron!

My guess is that the nutritionist has met plenty of people who need help controlling their diabetes who have trouble standing up for long periods of time.
We ultimately decided to go with NutriSystem. Her endocrinologist told us it's approved by the American Diabetes Hernka-fernka BlahBlah, and it's basically like Lean Cuisine TV dinners. That's the level of effort she's willing to make, so we helped her pick out the meals that're gonna be delivered to her house. Let's hope she eats them...
Interesting. You hyphenated Hernka-fernka. I think I prefer that.
I hope they taste good. Wonder if I can get my parents on those. Maybe I can print out a good description from americandiabeteshernka-fernka.edu.
 

Just got back from NJ. 

Sadly, they postponed Mom's surgery again... when they were prepping her for the surgery at the hospital on Wednesday morning at 6AM (*gulp!*), she had a mini-heart attack (her AFib went nuts and her heart rate shot to 170) so they stopped what they were doing immediately.  They had only gotten as far as inserting her IV and she has no fear of needles or anything, so they don't know what caused it (plus she was totally chill going into surgery), but we suspect it was because they told her not to take ANYTHING (not even meds) by mouth the morning of surgery, so she didn't take her heart medication. 

This is now the 3rd time her knee surgery was canceled. So we're really disappointed... but better safe than sorry. Per the hospital's orders, we went to her cardiologist immediately from the hospital who gave her a monitor to wear and also did a meds adjustment, hopefully she can try for a 4th time soon.  Man. 

Her cardiologist was really irritated that she wasn't allowed to take her heart medication that morning with a tiny sip of water, but that's what you get when you only see one doctor at a time, I guess.

I don't think she realizes how unhealthy she is... rampant diabetes, emphysema, COPD, congestive heart failure, AFib, blah blah blah... an anesthesiologist would be crazy to try to put her out.  Hell, when she had her hysterectomy they gave her an epidural because they knew it was too dangerous to knock her out, and that was 6 years ago when she was healthier. 

Anyhoo, we wound up staying in NJ for the full duration even though she didn't get chopped up... I could tell my dad just kinda needed us there.  

When we were in the waiting room on the morning of surgery and the nurse came out to tell us there were complications, Dad was pretty much trying to wrap his head around Mom dying. It was awful. 

(I'm too tired now as it's 2:54am, but remind me to tell you about Jerry.)

MORE
9/15 '18 12 Comments
What a strange tease. Hoping for progress.
Thomas Boutell 9/15 '18
For realz. Thanks, beb.
I'm sorry this is such a roller coaster for you.
Paul Lord 9/15 '18
That it is. I feel like it's so common for people in their late 40s/early 50s to go through this with their parents... I wish there was a simple solution. Alas.
Damn. I hope this improves and quickly. All of you have more than earned a respite from this.

How is she feeling now?
She's more disappointed than anything else. She's just in so much pain as she tries to move... yet somehow she remains agile enough to pop out for a cigarette every hour or so. So y'know.

But we're hoping she gets another chance soon.
"agile enough to pop out for a cigarette every hour or so"
Okay, you know what? As a person who just accidentally sneezed a Nicorette lozenge across the from (not for the first time), and my process of coping with the Nicotine Demon can be measured in Hunter's height, that makes me mad. True, I've been the person who could lift up a couch to find out if there were a nicotine source under it.

It makes me particularly mad because Vince's dad was/is a lifelong smoker, yet every single time he gets hospitalized, he is offered and refuses nicotine patches, because he says that he wants to deal with it on his own. So he spends hospital stays not only coping with whatever put him there, but also weaning himself off of nicotine.

Her consumption is going to affect whatever meds she's on, especially heart meds. She can ask for nicotine support: gum, patches, whatever. Argh. I'll shut up now. You don't need that shit. Sorry.
Ennnnhhhhhhuuggghhh. What a pain for everyone.
Sean M Puckett 9/15 '18
It is indeeeeeeedy.
Unbelievable.
I have had similar things happen, but with blood tests, i.e., "you said this was fasting blood work," "yes, but we meant you should take your thyroid meds."

How incredibly frustrating.

who's jerry?
I wonder what it would take to get all of her doctors in one room to duke out a care plan in person, where they all heard what the others were recommending. That would be really cool.

Jerry was another patient in the waiting room with us that day. I've got a half-written post about him that I need to finish.
Jill "xtingu" Knapp 9/16 '18edited
I love you and ... this sucks.
xoxoxoxo
 

Hi!

We are back from Burning Man and had a lovely time and are very excited to go again next year.  Lots to report, and a full writeup will likely be coming soonish.

But in the meantime... I have not had a chance to read OPW since right before we left... Say August 24th or so.  I will start reading what y'all wrote and getting caught up... but if I missed anything huge while we were gone, please lemme know!  :)


We are en route to my folks' house today where we'll be until Saturday morning. My mom is having knee surgery tomorrow-- she was supposed to have it done before Burning Man but when she showed up to the surgi-center the morning of her surgery, the anesthesiologist said, "I had no idea you had emphysema and AFib and COPD and all these other risk factors... I don't have the equipment to keep you alive here. We have to reschedule you so we can operate in a real hospital and not an outpatient surgi-center like this."  So tomorrow's the day. I'm praying she gets the relief she's been needing, poor thing.

We then have a wedding to attend Saturday afternoon back here in DE.  We fly to Arizona a few days later on Wednesday the 19th for a week to help my friend Jeff figure his life and house out since his wife (and my good friend) Debbie passed away last month... man. 

I've got a bunch of work travel scheduled between now and early December, so when it rains, it pours travel-wise.

Ok, imma get crackin'.

Hope everyone's rockin' in the free-ish world.


MORE
9/11 '18 11 Comments
Holy sh!t. I hadn’t heard about Debbie! What happened?!
It's a long-ish story, but basically she had a mental health breakdown (we do not know the trigger), and despite getting her every possible help money could buy, she drank herself and pilled herself to death. I can give you the full scoop when I see you. It's devastating.
Oh man. I'm so sorry.
1. Welcome home. I saw some photos of BM and it looked friggin' amazing.
2. Best wishes to your mom; I hope the surgery goes well, she recovers quickly, and it improves her quality of life.
3. I'm so very sorry for the loss of your friend. I know Jeff will deeply appreciate your visit.
Anne Mollo 9/11 '18
Thanks so much!

They canceled her surgery yet again (complications during surgery prep-- see my next entry), but here's hoping for the 4th time being a charm...
Hey, congrats on getting another burn in the books. Thanks for the temple delivery service, Talley appreciated it.
Sorry to hear about your friend. Someone much wiser than me once said that living is a process of accumulating scars until you die. Losing friends is one of those scarring processes, but it doesn't make it easier.
I hope your mom's mutant healing factor let's her pull through this knee surgery with aplomb.
Catch you sometime between now and next year!
Ray Conrad 9/11 '18
Welcome back, bebe. *smooch*
Karen Kuhl 9/12 '18
So much. Very sorry about your friend.
Thomas Boutell 9/12 '18
How did I ever miss this song? Heather from 11th Grade, if you're out there, you would have loved this.
Karen Kuhl 9/19 '18
1. Love it.
2. Pretty sure that's James T. Kirk's theme song.
 

There's a difference between being a proud small business where you're not tied to big dumb corporate rules so you can be flexible and agile, and being so small that you still have a single AOL email address on your website.

I want to support the small guy, but if they still use AOL, how can I be confident that my credit card info is secure in their office?

This one local place sells kitchen appliances. They have cutesy commercials featuring the owner's two small boys. "I'm Cameron!" "And I'm Gavin!" "And if you have trouble, call us and we'll make sure it gets handled RIGHT!"  I wonder how creepy it would be if I called up the store asking to speak to Cameron or Gavin to complain about a bill or a customer service issue. They would call Child Protective Services in 5 minutes. And what the fuck does that say about their family dynamic (or Dad's business acumen) that a 7 year old is their accountable executive in charge of customer satisfaction?!

Anyway.

We need a new washer/dryer. The one I have currently is the set that came with the house. I would love to get a set of stackables, and then put a shelf where the dryer currently is.  The washer/dryer used to be in the basement, but my house's previous owners brought them to the main floor of the house, taking up the hall linen closet with the washer/dryer. So I'd love to reclaim some of that closet space since I currently have none whatsoever, unless you count bedroom closets.

I heard a thing on the radio this morning about how small businesses should consider buying "CyberInsurance" in addition to general liability insurance and worker's comp, because small businesses are more vulnerable to cyberattacks.  Really? I know of a zillion huge corporations that were brought down by the ransomware viruses and no small businesses that I use were hit. But maybe that's because large businesses have a higher percentage of dumb people who surf the web at work, clicking on shit they oughtn't... and granted, I'm a small (vaguely tech-related) company, so maybe the percentage of employees who work for my company who click on dumb shit is 0%. 

But I figure Cameron and Gavin (or their mom) click on dumb shit pretty often, so they probably need CyberInsurance. 

The only people who use the term "cyber" are people who shouldn't.

In other news, we spent this past weekend (Saturday through Tuesday) at my folks' place. We hadn't seen them since Christmas, which is waaaaay too long. My mom tore a muscle in her right shoulder, so in addition to her back and her legs being in constant pain, let's add her right shoulder to the laundry list.  My dad has days where he's very weak for no discernible reason, so we needed to go up there and just help them out a bit. They felt so awful that they decided to cancel Easter dinner because my mom couldn't cook and my dad couldn't clean the house, and they both felt that having a house full of people would be too much.

So we offered to come up and do all of the cooking/cleaning, so now Easter is back on. 

We're in the car now heading back up there. We'll be there for a few days. I'm so excited it's finally starting to get warm... this fucking winter might FINALLY be behind us.

I hope everyone has a fabulous Easter, Passover, or April Fool's. :-)

MORE
3/31 '18 7 Comments
"So we offered to come up and do all of the cooking/cleaning, so now Easter is back on."

Yer gud.
I'm torn between "har-har, you still use AOL," and "oooh, you were a savvy early-adopter." I say that because among lawyers, it's often an early-adopter thing. As in, a lot of lawyers were quick to get word processor machines and Palm Pilots and Compuserve numbers -- but then they didn't upgrade, whether because it was a pain to migrate the files or it got too expensive (because they needed to hire IT staff/consultants) or time-consuming. And if you're not at a firm where they give you a LawyerName@ThousandDollarSuitBigLawLLP.com address, then why not keep using the same AOL address ("number") that your clients and their world-of-mouth referrals have been using for 20 (!) years now.

Also you can take my WordPerfect when you pry it from my cold, dead fingers.

Hope yer Easter trip goes well!
Michele Grant 3/31 '18edited
I think I saw WP on the shelves in a store recently, and it made me happy. I don't have much preference in word processor programs (I tend to use Wordpad in windows or Google Docs) but I did use WP in college and remember it fondly.

I also happen to know a big tech company that still uses Lotus instead of Office, so there's that.
WordPerfect (actually an entire suite by Corel) is regularly upgraded. I had a learning curve from Quattro, which is what Lotus 1-2-3 became, to Excel; I still think Quattro is better in a lot of ways but I'm more likely to start something new in Excel now. The Corel version of PowerPoint leaves a LOT to be desired, though.

I avoid Google Docs for functionality, privacy, security, and subpoena reasons, and also because of the risk that anything Google could just disappear at any time for no reason, and there's no recourse. The risk is small, but I'm unwilling to take it.
Entirely reasonable. I suspect if I was doing anything that, you know - mattered - I would have the same mindset.
🤘 Scripsit forever 🤘

Love it.
 

I should not be awake right now.

I drove exactly 300 miles yesterday over 6.25 hours driving between rehearsals, Matt's performance at a north Jersey wedding (nobody we knew-- it was just a gig, and I did not attend... I was just the chauffeur), my parents' place, and home. 

I was very happy to see my folks yesterday, even though it was a quick visit. 

I have two more rehearsals today and another performance. 

I bought my house exactly 10 years ago Friday. 

​​​​​I still have boxes I haven't opened since they were moved here from my old apartment. 

I spend a lot of time waiting for my phone to do what I'm asking it to do, which often isn't much.

I think operationally, not strategically.

I move gently.

If I have a problem, I solve it fundamentally.

I think mentally-- and when I fly I'm so high, I do it intercontinentally.

(Those last three lines courtesy of Robert Bryan and Dave Peters. Listen here.)

MORE
11/12 '17 6 Comments
Wow you are one seriously busy lady! I hear you re the phone... it gets old. How hard is it anyway for my $600 machine to perform simple tasks? Ugh.

Congrats on 10 years of home ownership and enjoy all the gigging (exhausting as it is). And I hope you get some rest soon!
Leela 11/12 '17
Oh shit.
I thought, “That sounds familiar... wait, that’s me, that’s Dave.”
Wow. Thank you.
Robert Bryan 11/12 '17
I sing that song ALL. THE. TIME. I love how he delivers your lyrics (the inflections make me soooo happy), and the little vocal percussions he sometimes does betwixt verses.

I fly a lot. So that line is in my head very often. :-)

Thank you to the both of you for giving us all that song.
Holy crap! I completely recognize those lyrics from the mix you put that on about a bajillion years ago. I didn’t know that was Mr. Bryan‘s work!
Yup! Rob wrote the lyrics and Dave set it to music, played it, and recorded it. Fun, right?
Fun indeed!
 

I have a few things to talk about, but it's 2am (now 5:30am) and I'm now too tired... so I'm just going to leave videos of two songs from the Sunnyvale / Hot Breakfast!  house concert that happened in August in north Jersey.  (Huge thanks to Anthony Stramaglia for shooting and posting these!)

This first song ("A Thing to Get Through") is brand-new, and this recording was not only the song's very first "public" performance, it was also perhaps maybe only the 5th or 6th time we'd actually played/sung it straight through... Matt and I had learned it quite literally the night before.  It was a safe and friendly crowd, so I wasn't worried about making a mistake; I was more worried about crying in the middle of the song. (You can hear me start to get choked up a few times; you can just hear things tighten up and me make slight vocal adjustments to compensate.  Or maybe you don't hear it since I didn't use a mic, and/or maube you're not that anal about vocal mechanisms. Whatevz.  Anyway, getting choked up is normal and often happens when you lose a friend and you sing a song about the loss to a room full of people who loved him.)  Andrew (the songwriter and piano player) was Paul's (the friend who died) best friend, and they were VERY tight, and kept up their friendship via email since they lived on opposite coasts (Paul in north Jersey and Andrew lived in Portland, OR).  They are both gifted writers, and I secretly pray those letters/emails get published some day.  Heavy philosophy, social criticism, music analysis and theory, knowing thyself, etc.  

Anyway, the lyrics are below the video.


Below that is Video #2 for an old song ("The Job Song" a.k.a. "Get a Real Job") by our old band The Evelyn Situation. This song was written in 1992 for two women's voices and piano and guitar as an evil polka, and has been re-arranged over the years for 2 voices/one kazoo/two guitars/piano; then for one vocalist (me!) plus a 17 piece big band (the Industrial Jazz Group), all the way to this current stripped-down version of one voice, one piano (below).  The video for The Job Song is below the first one, and the lyrics (which are wonderfully clever) are below it.  (and yes, I was super-enunciatey. I didn't have a mic and I wanted to make sure everyone understood the words. I'd rather err on the side of over-pronouncey than mumbly. I hate when I can't understand a singer.)

A Thing to Get Through - - words and music by Andrew Durkin. (For Paul.)

Flying in to Jersey 
With the winter on my mind
I got angry at a stewardess 
Who was trying to be kind
My past was up ahead, and my future far behind
mm-mmm, mm-mmm, mm-mmm

If you had a fortune
Would you have been who you wanted to be
If you had a lifetime
Would you have used it to finally get free
If you had a second chance
Could you do now what you didn’t do
Or was life just a thing to get through

Some came from the beginning 
And some came from the end
Some I hadn’t seen forever
And some I might never see again
Help me, Jesus—is this anyway to treat a friend
mm-mmm, mm-mmm, mm-mmm

If you had a fortune
Would you have been who you wanted to be
If you had a lifetime
Would you have used it to finally get free
If you had a second chance
Could you do now what you didn’t do
Or was life just a thing to get through

Maybe you are laughing
From your attic in the sky
Maybe you’re that piece of clay
That finally learned to fly
Do you think we’ll ever know
What happens when we die
mm-mmm, mm-mmm, mm-mmm


The Job Song (words and music by Andrew Durkin)

This guy with horns said, "There's a cure for your financial state: don't do the thing you love, cause good things come to those who hate. I'm a powerful man, and though I think you're a slob, if you will flatter me, I'll get you a real job."

"Give up your dreams," he said, "Yes, that's the way to have it all. Look at your cousin Neil: he's young, he's rich (he's going bald). He may be dead in a decade or two, but he drives a porsche, and yes, you can drive one, too. Why don't you get a real job?"

Having just finished school, I'd never met his type before. "You're very kind," I said, "And yes, you're right, I'm very poor. But I don't see how your scheme could help me, And so I wonder if you might not tell me more. Why should I get a real job?"

"Well, don't you want to be like the people on TV? So bored and jaded and doing something that you have always hated? Just give in! How could it be a sin? The big machine must keep on rolling on... Why don't you get a real job?

For I have here in store each numbered casket for your generation: I've been waiting with anticipation! Truth, you'll find, is on the dotted line, so be a good sport. That's what life is for!"

Anyway. 

I have to tell y'all about the new consulting gig and Matt's music directing a show and me thinking about joining a christmas carol troupe for this holiday season to make a few bucks singing in malls, but that'll have to wait until the next post of One Post Wonder.

MORE
10/8 '17 11 Comments
Wow. I remember the job song. Hearing it in a slow, mournful incarnation is very affecting.
Thomas Boutell 10/8 '17
I agree! And I could even stand to hear it slowed down further, a soft studio version with just the voice and piano.
Anne Mollo 10/8 '17
Thanks so much for giving a listen!

I'll suggest that to Andrew and see what he says... we're always up for trying new stuff.
No! I just meant, "Wow this song is so awesome I could imagine loving it in any style, from polka to sappy studio ballad."
Anne Mollo 10/12 '17
Thank you, thank you!
It blows my mind that you remember a song from a band I was in before I knew you. It blows my mind because I can't believe there was ever a time when I didn't know you.

Though, next year will be the year where I will have officially spent more time alivewithh you in my sphere than without. That's pretty fucking cool. I owe it all to Jeremy being pushy and They Might Be Giants.
Ah, their Horse With No Name era! Fun fact: their recent albums... Which are numerous, because of the influence of Jonathan Coulton's work ethic... Are all excellent.
Thomas Boutell 10/12 '17
Yeah, I love me some TMBG still. I love how they've grown with the times, taken advantage of the technology, and still stay screamingly relevant (to me, anyway). I bought Jeremy their Fan Club membership and he's been known to occasionally share the fruits. SO GOOD!
I remember the Job song too! I used to put it on mixes.
Eeeeeeeeee!!
“A Thing to Get Through” - I experienced solid frisson with full hair follicle involvement. Thank you for sharing that, and for, you know, bearing the existential burden required to sing that in the first place.
Robert Bryan 10/8 '17
Aw, thanks for listening. :)

I've been revisiting some other videos from that night, and there's one where I damn near lose my shit every time the chorus comes around. Full-on voice crack... but it just sounds like I'm a shitty singer as opposed to someone feeling feels. Oh well. I don't really care... the only people who can see those videos are people who know.

If I think about music too much my brain explodes from wonder.