((waves hi!))

I'm here, been lurking, though not as much as I would have liked.  I am all caught up on everyone's entries, but I admit I didn't read every comment. I'll peruse them as I can.

All is good... well, as good as can be expected as we're coming up on a year of a pandemic. 

Instead of something well-written, here's a trusty listo:

• We played our 100th Coffee Break Concert on Wednesday, Feb 24th. A milestone!
• Also, Matt and I marked 10 years together a week or two ago.
• We got an estimate to get our ugly kitchen redone, and I'm excited about that.
• I'm still not teaching, but I'm selling some courseware which is nice.  Would like to be selling more, but baby steps.
• I have a bunch of dental work that needs to be done. I just got a form letter that says my dentist no longer participates in my dental insurance. She couldn't have made that choice 6 weeks ago when I chose my dental plan for 2021?
• I have had pre-menpausal osteoporosis (osteopenia) since 2010 or so. My doctor told me to get another bone density scan to see how it's progressing, since it had been a while since I got one.  Insurance denied it. Why on earth would insurance deny a bone density scan? Isn't the only reason for a bone density scan is to check to see how far your osteoporosis is progressing?
• Going to see the parents tomorrow.  Mom's mental state is getting worse due to a total lack of stimulation. The home health care workers we hired to come in 3x/week  are fine, but they aren't interesting to my mom, so they basically just do light housekeeping and that's it. They aren't able to engage with my mom... she just doesn't care.  This pandemic couldn't have happened at a worse time dementia-wise. Right before Covid hit, she was interested in hanging out at the senior center a few days per week just to make some friends, play some bingo, and use a few brain cells. So much for that.  By the time the senior center reopens, I worry she'll be too far gone. 
• My dad got his first covid shot (didn't even feel it); his second one is in 3 weeks. Mom has not gotten hers yet.  My brother's whole family has gotten fully vaccinated, and I am absolutely delighted they're immunized; but there is a 10% "huh?" in my brain wondering why his 17 year old daughter already received her two shots yet my 78 year old mother with many comorbidities hasn't gotten her first yet.  I try not to think about this too much. We'll all get them in due time; vaccinating 350 million people ain't easy. 
• I have a crush on Dr. Fauci. 
• SNL has been killin' it in 2021.  I like that they're not afraid to just be surreal.  They do always have to have to the one character who has to explain the joke a bit, but it's a small price to pay.
• Our Saturday night ritual is watching SNL on nbc/hulu, and then watching "Big Questions with The Dead Milkmen" on YouTube.  ("Big Questions" started pre-pandemic when the guys were in the studio recording their latest album. They decided they needed more content for their YouTube channel, so at each week's recording session, one of the guys would come up with a question, and each guy would answer it... and they'd follow it up with Recommendations, where they recommended something they think people would dig (a movie, book, food, cat toy, going for a walk, etc.).  It's absolutely delightful.  Once lockdown started, it became (like all things) a Zoom call.  It's really great. Some of their recommendations have been really wonderful during lockdown.

That's the random news. 

I hope everyone is doing well... I miss you all, and I really hope to get back on the OPW wagon.... which is what I said last time... but... yeah.

xoxo

Last got a haircut on January 3rd. Yowza. 

Because I bleach the everloving crap out of my hair, sometimes the unavoidable small amount of sacrificial breakage serves as a cut... "a chemical cut," as we jokingly call it. This means that if I bleach my hair at home during long stretches, I can sometimes put off a haircut a bit. (I'm not saying this is optimal, but it has bought me time in the lean times and the busy times.)

But with the lockdown in place, and my hair rapidly approaching "meth-using love-child of Guy Fieri and 1985 Richard Marx" status, I decided to whip out Ye Olde Clippers and take matters into my own hands.  (I have done this before, but never after 3 months of growth.)

Holy moley, I am a new woman. I kept the top Fieri/Marxy, but the sides are clipped to a nice 1/2" and YAY.

Easter Zoom Calls / Parent Update

In other news: Today is Easter and we did a Zoom visit with Matt's family and then my family.  Guiding Matt's family through using Zoom was similar to this, but once everyone finally got on it was fun.  We yapped for about 45 mins before we said goodbye and then chatted with my family.  We had my parents in one window Zooming in fron their home in north Jersey, and my brother's family of five in their window, from their dining room about 25 minutes away from my folks, also in north Jersey. My mom didn't understand why we weren't all able to be physically together, and kept asking where we all were. She kept saying, "Well I know you're all so busy," as if she thought we couldn't get together because we just didn't feel like freeing up our schedules. At one point she also didn't recognize the grandkids... but that's kind of understandable-ish because she only sees them maybe twice a year, and the two girls (ages 16 and 23) look different every time we see them (hair color/length changes, typical weight fluctuations, new glasses, etc.).  Mom also kept asking where Matt and I were, because she had assumed we were having a big Easter dinner with Matt's family. I assured her we were in my kitchen alone. But again, her not recognizing my kitchen is also sort of understandable: Mom has been to my house maybe twice since I bought my house in '07... so how could she realistically recognize my kitchen?  I can't let myself stress about it.

What's ultimately important is that she and my dad are safe up in NJ at their home in the sticks, and they have neighbors and folks offering to go to the store for them (which my dad rejects because wants to get out of the house). As much as I bitch that they live on the moon, it has given them some insulation which is comforting. 

Their isolation, and now the lack of the home health-care companion I had coming a few days a week to keep Mom engaged and stuff, means Mom's just pretty much sleeping much of the day because she's bored and understimulated. I asked my dad if hecould suggest maybe they watch a movie together, and he said, "Well, our tastes don't line up."  I jokingly/not-jokingly said, "I suppose being flexible for 100 minutes and watching something maybe Mom might like... that's probably asking too much, I guess...?"  He just shrugged. 

It's so weird. Maybe it's because gender dynamics have changed between our generations, and maybe my mom believes that it's her job and duty just to go along with whatever my dad wants... and instead of asking to watch a movie or the news together, it's better for her just to go sit in her room alone with her TV blaring, and for my dad to sit in the TV room with his TV blaring.  *shrug*

But when all you have is each other, and understimulation is only going to make her decline WAY faster, wouldn't you wanna watch a stupid movie or even friggin' Tiger King and just BS about it? Dementia or not, she can watch a movie. 

I also get that Dad is her sole care provider right now, and watching his wife decline decline decline and then ask the same questions 27 times in a row has got to be exhausting... so maybe he welcomes the time off and the peace. But since she's honestly out of her room maybe 2 hours a day total (that's to eat and grab a smoke), it seems like it shouldn't be too much of an ask. 

I know I'm making a lot of assumptions on his part, which isn't fair. So I should probably knock that off and change the subject. 

In slightly other news, for the last few years he's been getting REALLY wound up over little stupid things. Part of it is our Jersey snark of always having to have some snitty comeback to small stuff, but it started becoming his default behavior, and we've been really worried.  His anxiety has been through the roof, and made waaaaaaay worse since his various hospitalizations this year since my Mom's been so bad since October or so. We all kinda think his first two hospitalizations have been physical manifestations of his anxiety.  So the hospital doctors increased his xanax frequency from "as needed" to 3x daily (a low dose each time, but still). Sometimes it'd make him groggy, but it definitely did take his anxious edge off. But I didn't like the grog-- you could see it in his eyes.

His regular doctor (who is awesome) did a regular med-check at the end of March via a telemedicine visit and said he was concerned about my almost 80-year-old dad taking so much xanax, and would prefer he not build a tolerance, and would prefer dad use it as a rescue medication for legit panic attacks, and not as the way he copes with his wife.  Instead, he put him on Zoloft (sertraline). At first I was concerned... but after a week, HOLY MARY MOTHER OF GOD he's a new fucking guy. He's handling lockdown great, he's chipper, he feels good, he's got more energy, he's got more patience, he doesn't get overwhelmed, he doesn't get out of breath, and he doesn't feel 'medicated' like he was feeling with the daytime xanax... so it's a definite home run. It's like I have my old dad back from 25 years ago. Yaaaaaay! 

Fancy Easter Dinner

The food we have eaten today: Buttered toast made from some bread I made last week that is still delicious (ate that at 1:30pm), a few strips of bacon (ate that at 2:30), and then some home-made french fries at 8:30pm as a snack. Only the finest Easter meal. 

We have not ordered any takeout whatsoever during this lockdown. I know I should support my local businesses, but I just can't trust that these small businesses have kitchens designed for social distancing, and enough PPE to last long shifts. I'd rather just buy gift cards from them online and this way nobody has to be in danger on my account. (I am not judging anyone who orders takeout. Please don't @ me.)

With that, it's been fun getting back to our "home economics" roots and planning meals, going to the store once every 10 days or so, buying only what we planned, and making everything here, and then making good things from the leftovers.  We will probably have to go to the store this week since we are low on some staples, but if it needs to wait, we will not starve. We haven't dug into the soups in the pantry or anything.  (Now that I've written that, maybe I will stay home.)

Masks

Because of Burning Man prep over the years, I had a few boxes of N-95 masks. I donated the sealed boxes and the healthcare workers were VERY grateful. I had an opened box with only a few masks in it, so I kept that and sent my parents two masks, and kept two for me and Matt, and gave two to my mailman (along with some PVC gloves and a small thing of hand sanitizer I had) after I heard our post office didn't have PPE. 

But even with that, my dear BFF Patty is making gorgeous masks that follow one of the CDC designs, and even comes with replaceable filters and a moldable nose-piece and adjustable ear-loops. They're wonderful. So if anyone needs masks, she charges $10/mask (that comes with a bunch of filters and great instructions and are beautifully made in fun-printed fabrics) plus shipping. They are worth every dime. I've been buying them for friends and family when I hear they are mask-less. She has adult and child sizes.  So if you need masks, lemme know and I'd be happy to ship you some as a gift. 

In the last bit of thing:

Is there a way to back-date entries, kinda like how LJ used to do?  I get that this might be anti-OPW ethos, but I feel bad for dumping 73 years' worth of bloggy thoughts into one long entry, when maybe I could spread them out with a carefully-used backdate option.  (Or maybe I could just plan my writing better.)

I wrote this maybe 10 days ago.

I forget where I left off, but I was living full-time in NJ at my folks' place from 2/8 to 2/28*.  Most of that time I was away from Matt because he was working in Maryland, music directing a show.  It was a really hard three weeks.

(*which does not include the 5 then 6 days in January we were up there, too.)

One of those February weeks my dad was in the hospital, so with my Mom's routine disrupted she was extra spacey. Once Dad came home, things slowly returned to normal, but Dad was really struggling with the fact that for the first time he wasn't just *bing!* back to normal. He is not used to feeling weak and needing help.

Anyway, Dad had a bowel obstruction, and thankfully the surgical fix didn't require a bowel resection-- instead there was just a weird piece of string (made out of a strand of scar tissue) that strangulated his guts.

Didja ever cut a raw, boneless chicken breast and there's that weird white tendony-gristly thing that kinda goes through a 3rd of it?  It looked like that.  So the doc snipped it, and in one second my dad went from Guy In Agony Who Could Not Breathe And Wanted To Die to WHEW SWEET RELIEF.  They waited six days before they operated, hoping the obstruction would just kinda clear itself, but after Day 6 they realized they needed to get in there. Three teeny laparascopic incisions and a snip later, and he was fixed up. They watched him for 2 more days and then released him.  

(Side note to Jeremy Moskowitz  and Matt Lichtenwalner : Remember that time in either 2006 or 2009 (I can't remember) when we went for Indian food someplace on Kirkwood Highway and I had to go sit in the car in the middle of the meal, and when you came out I was inconsolably wailing and screaming bloody murder in the back of the car, and you guys took me to the hospital? That was a bowel obstruction. Dad had the same thing. We're built weird, I guess.)

Problem is that while Dad was in the hospital, they stuck a naso-gastric tube down into his gut and pumped his stomach for 6 solid days, to relieve the pressure building behind the obstruction in hopes it would clear itself. During this time he wasn't even allowed to have ice chips, let alone any food, broth, water,  nada.  After the surgery they continued to pump his stomach so he could heal up, so for a grand total of 8 days he didn't move, eat, or drink anything.  He was a withered shell of a guy.  We were afraid he'd never regain his strength or confidence after that.  Once they sent him home, it took him about two weeks of constant care by yours truly, but by February 28th he was back to about 87% strength, which was enough for him to tell me I could go home, so I could do a gig on the 29th.  (Gig was great. More on that later.)

Mom continues to be on Planet Mom. Her dementia is fascinating, honestly. If you talk to her, you would have no idea anything is wrong. She is funny, normal, on-task, quick-witted, well-spoken, patient, friendly, sweet, knows all of her stories and recipes, all that.  It's just that 5 minutes later she won't remember that you had that conversation.  So she'll go to a doctor and will sign in perfectly, will be friendly, will make eye contact, and will tell people things that sound totally reasonable... and 50% of the time she's right.  But while my dad was in the hospital I had to take her to a GI appointment, and she told her GI doctor that she was the one who was in the hospital for a week... and the GI doctor dutifully wrote it down in her chart, because it sounded totally convincing. I had to gently say, "Mom, you weren't in the hospital; Dad was."

"What now?"

"Dad was the one in the hospital, not you. He's still in there now with a bowel obstruction."

"What? Did I say I was in the hospital?

"Yep, just now."

"Was I in the hospital?"

"Nope. I mean, you visited Dad, but you weren't the one being treated."

"Oh. Hmm. ((chuckle)) Well, that's old age I guess."

The GI doc was puzzled listening to us have this exchange. On the way out I popped my head into his office and asked him to please make a note in her chart that she's got early-stage dementia, and to please make sure someone else is in the examination room with her, because otherwise we can't be sure if she'll be giving accurate information. And also, she won't remember any instructions you give her.

Fast forward three weeks later, where we had a follow-up appointment with the same GI doctor. He now sees in her chart the note he wrote-- "patient has early stage dementia."  I am in the examination room with her again.  As he prescribes her antibiotics for something, he looks at her and says loudly, "Now don't forget that you have to take these for 10 days. Don't forget, now!"

Right. Because those are the magic words that make dementia patients miraculously remember shit.  Fucking idiot.

(And no, that wasn't his way of making sure I was paying attention. Trust me on this one. He just doesn't get it.)

She's like a computer with a bad hard drive. If something was written to hard drive before 2017, she remembers it perfectly. Post 2017, it gets glitchy. Starting around Thanksgiving 2019, it's RAM only.  

Anyway. While I was up there, I did not think I would ever be able to come back to DE.  I had several private, epic, Oscar-worthy meltdowns... and in the twitchy aftermath of one of them, my brother picked up on the fact that I wasn't doing so well and he suggested that I go home to DE for one night, sleep in my own bed, attend a Sunday rehearsal that I didn't think I'd be able to attend, and then head back up to NJ afterwards, and he'd watch my folks for that time.  Those were a sweeeeeet 20 hours, I'm not gonna lie. It's amazing how much one can recharge in a short amount of time. Everyone at rehearsal was so, so, SO lovely and supportive, and genuinely asking not only how my folks were doing, but how I was doing. This was weird for me... I've never really been the one who needed a supportive hug; I'm the one who gives them. I didn't even know that many people even knew about my parental situation. I felt really loved and cared for, by people I didn't really think ever gave me much thought. 

While I was in NJ, I contacted 41 home health agencies to lend my folks a hand... and only TWO serve Warren County (the ass-end of cow-town NJ where they live). One agency had caregivers that live in Newark, which is about an hour away from my parents. Generally speaking, Newark folks don't understand country life, they don't understand deer and bears and how your nearest neighbor is a cow a few acres away. They also don't drive generally, so when we tried one caregiver we had to pay a $68 Uber ride each way for them. How would they be able to give my parents a hand if they can't even drive?  So they weren't a good fit.  But the other agency, Home Instead Senior Care, is based about 8 miles from my folks, and their caregivers live in the area. They understand the ways of the cows. After some shuffling and scheduling, we now officially have Wendy the caregiver spending 3 days a week with my mom for 4 hours at a clip. This basically frees up my Dad to turn his brain off so he can putter in the garage, go have lunch with the guys, snooze, pay bills, whatever. Wendy makes sure my mom is entertained, fed, takes her meds, helps with meal prep, can take her to get her nails/hair done, take her to doctor appointments, etc.  It's a huge relief.  Of course now with all of the COVID-19 lockdowns, I'm not sure how long this will last... but I'm comforted that at least for now there's an extra set of competent eyes making sure she (and Dad) aren't experiencing any symptoms. 

Now we're home. I'm writing this part on 3/15/20 now.

So anyway, I've been home since March, and I've mostly been hermiting. Like, pretty much staying in my PJs, leaving the house only when absolutely necessary. I've been doing a decent amount of voiceover work, and 

On Friday March 13th, Matt's Ramones band had (53rd & 3rd) a gig at Oddity Bar, which was comfortingly bleachy, and not very well-attended due in part to collective nerves, and the Delaware State of Emergency which didn't make ir clear if folks should stay home. We were all OK with the attendance, honestly. The 25-ish folks who did attend really wanted to be there, and we all amused ourselves coming up with silly, inventive ways to greet each other without shaking hands or elbow bumping. Everyone tipped the bar-staff very well, knowing they had it rough. Some of us even ate at the Chinese place next door and overtipped there, too. 

In other news, the stores have been busy but not nuts, and fairly well-stocked. They were out of bleach, hand sanitizer,  and rubbing alcohol, and low on bread, but nothing we couldn't work around. (Besides, we already had bleach and rubbing alcohol on hand Because Adult, and also Because Burning Man.)  We feel prepared for a week or two (or  of isolation if it comes to that.

I bleach-washed the bejeezus out of the kitchen floor and the entire master bathroom, so I feel like I've accomplished something. I'm hoping my burning lungs are from the bleach and not a symptom of COVID-19. 

Anyhoo, there's more to tell, but this is already hella long. 

As a reward for reading this long, blathery post, please enjoy this delightful thing by making with the clicky (fixed link!):

https://twitter.com/DerrenBrown/status/993426983320211457?s=09

Here are some random links I have saved for things I found cool or interesting:

1) Sean Ono Lennon's band, GOASTT, and their song "Animals." The video is also mesmerizing. It is clear that he is the son of two brilliant artists. If anyone's gonna have an unlimited bankroll to create art, I'm happy it's him. (GOASTT stands for "Ghost of the Saber-toothed tiger.) NSFW (bewbs).

2) Lizzo's Tiny Desk Concert. She has an impressively filthy mouth, but she makes it so endearing. And holy craaaaap does she have chops! She is unfathomably cute and quick-witted, and so comfy being in the spotlight. NSFW (language).

3) If you don't have time for the Tiny Desk Concert above, enjoy Lizzo's hilarious 3-minute parody of Anchorman. She's such a star, and her comic timing is perfecto. (I love the idiots in the comments saying "Um, she's not playing the flute here." No, really? She's not actually playing the flute when it has flames shooting out of it? You think that might be lipsynced? Thanks, Mozart.)  NSFW (language).

4) The "Satisficing" subreddit, containing gifs and videos of cake and cookie icing and piping... so soothing, so magical. It's visual xanax. 

5) The New Voice Studio run by Lisa Paglin and Marianna Brilla. I would give a kidney to study there with them... good GAWD. They say everything I have felt over the years, and I wanna go there and learn every single thing in their heads. Oh lordy lordy lordy lordy. After I win the lottery or something. The YouTube video on their home page (ya gotta scroll a bit) speaks right to my soul.  (A zillion thanks to Michele Grant for indirectly turning me onto them via this article about Adele and other singers blowing their voices out only to have miraculous vocal surgery performed on them, only to have them blow it out again, because they never fixed their shitty technique.)

Parent Update

In other news, we just visited my folks and had a really great visit. Everyone was chipper, we genuinely all enjoyed the visit, we went out to eat, etc.

It's pretty clear that my mom is mentally slipping... her short-term memory is really going bye-bye. She forgets to play the bills, and gets lost driving pretty consistently now, so my dad now handles the finances and drives her everywhere now, which I guess is not the end of the world.  But other than occasional short-term forgetfulness (she watched me and Matt eat english muffins; about 20 seconds later she asked if we ate breakfast even though she was looking at our plates, and she even took a bite of one of our muffins), she is pleasant, fun, on-task, engaged in conversations, and overall pretty OK. My dad is terrified, OTOH, and exahusted, of course, because he has to stay on top of everything... so it was nice to give him a little break.  Her blood-sugar is also considerably more under control, which is awesome. She looks and feels better, and she says she has more energy.  Her diabetes doc (the one who was delaying approving her  much-needed knee surgery because her blood-sugar numbers were too high) now says he'll approve the surgery in 3 months if she keeps up the good numbers.  The sad irony is that in 3 months she'll be that much farther gone mentally, she won't be able to enjoy her new knee and the freedom it affords her due to her cognitive decline. Dad worries with a fixed knee she may even wander on foot. We'll cross that bridge when we get there.

This all sounds grim, but I'm still strangely optimistic.

We've been at my folks' place since Sunday. Dad had carpal-tunnel surgery on his wrench-turnin' hand on Monday, and he was very worried about how it was gonna go. If he can't use his right hand, he might as well check himself into the rest home, since fixing cars and building stuff (and caring for my mom) is what keeps him alive. 

The good news is that the surgery went smooove like buttah, and 10 minutes after he got home he made himself an omelet with his bionic hand... so he's fine. Now that he's a few days out his fingers are a little black and blue, but it's really all good.  Today at 2:45 we take him for his post-op follow-up, and then we'll head back home. 

We have this rhythm here at my folks' place where my parents get up early (around 7) and fix themselves some coffee and a small bite. It wakes me up, but I stay in bed snoozing. I They are so sweet and kind to each other in the mornings, and it makes me happy.  Then my mom goes back to bed, and my dad goes out to get coffee and bullshit with the guys at Steve's Transmissions for a few hours, and he gets home around 11. By then Matt gets up and brings me a cup of coffee in bed because he is the best, and then he hangs with my folks a bit while I build up the courage/strength to put on pants and go out to the kitchen with everyone. By this time my folks' morning sweetness has worn off and they're both back to interrupting and my dad answering for my mom and then my mom getting defensive and my dad not understanding why she's suddenly pissy and then I explain Communication 101 and then a lightbulb goes off for a moment until they both find it easier to deem me too preachy than it is to try changing how they talk to each other.  

So I'm still in bed at 11:58am. I need to get out there and I don't wanna. 

Anyhoo.

I have been go-go-go since the end of October, as companies are rushing to spend their training budgets so they don't lose them for next year. I've had classes in TX, Denver, Philly, and then I took a class in DC, then we went to CT for Thanksgiving, then we had a gig in West Chester on Saturday, and then we left for NJ (here) the next day.  I haven't had a day off in a while, and I need one.  The emails are piling up (work emails and friendly emails) and I haven't had much time to even read them let alone reply. If I owe you an email, I promise I'm working on it. 

Next week (Dec 3-6) I teach a class at UPenn again, and the following week (Dec 10-13) is another class that I just don't feel like teaching since it's the week before our big Christmas Show (which is on the 15th), so I'm having my pal Joyce teach it. We're gonna be building sets and rehearsing and panicking that week, so there was no way I could be away for the week. With Joyce teaching the class, I'm not making as much on the class as I normally would since I have to pay for her airfare, hotel, and instructor fee, but I'll still make something, and something is better than if I had just turned the work away and gotten nothing.

I have a ton of other work to do and no desire to do it... I'm not sure if this is some low-level depression, the start of the winter blues, or just general laziness. Probably some combo thereof.

In other news entirely, a few weeks ago I was taking a class in Washington DC and I took the train down. DC's Union Station has a bunch of mall-esque stores in it, and I was worried I was gonna be cold as I walked to/from class, so I popped in a store I'd never heard of and bought a warm undershirt for $19.00. And now, I have a new fucking addiction... these HeatTech bra-top undershirts by Uniqlo. Most bra-top undershirts have a totally useless shelf-bra, but these things have this kinda combo shelf-cup configuration that HOLY BALLS actually handles my mutant titties better than any other actual bra I have ever worn.  Going from a 40DD to a 32-Pfffft is impossible to fit, and these things work (they actually work!!), praise jeeeesus!  I bought a bunch more, so I pretty much haven't taken one off since November 13th... and ta-daaa. I am comfortable and warm (and perky!) for the first time in well over a decade. 

Perhaps that is TMI. Perhaps I don't care.

It's my blog, and I'll TMI if I want to. :)

Ok, time to get motivated. Bleh.

We were all set to leave for NJ yesterday so we could accompany my folks for mom's 4th attempt at knee-meniscus-repair surgery which was scheduled for this morning. 

She called me yesterday before we got on the road to say that they canceled it yet again... this time because her pre-op testing showed her blood-sugar has been too high, so her endocrinologist wouldn't clear her. 

She is really really bummed. 

I asked what the next steps forward towards rescheduling are, and she said, "I've gotta get my blood sugar under better control, I guess."  I asked her how she should do this-- is it as "simple" as an insulin adjustment?  She said in a defeated tone, "I guess I need to eat better." 

Strange that a diabetic shouldn't be subsisting on dollar-store frozen pizzas, Ritz crackers, pasta, and insulin.  *facepalm*

Anyway, I was happy (?) to hear that her endocrinologist said "Come down today from 3-4pm and meet with our nutritionist, and we'll work with you to get your blood-sugar down. We want you to have this surgery." So she's going there today.  I asked her to ask the nutritionist for meal ideas that are easy and quick because she can't stand up long enough to cook a healthy meal, which is why she eats what's easy. Is there a mail-order meal service that they recommend? I know there are meal services like Blue Apron and Sun Basket, but those require you to prepare the meal yourself, which probably requires some amount of standing.  I also don't think she'd spend that kind of money on herself, but that's a different story... and one Matt and I might be able to solve since her birthday is coming up. Maybe a few months of a meal service would be a nice gift. Or maybe that would be awful and would make her feel judged somehow... I don't know. 

I just wanna help. 

Anyway, we're heading up in an hour or so, and we'll be there until Friday. We've got a real busy weekend coming up with 2 gigs on Friday night and Saturday afternoon, and family stuff on Sunday.

Just got back from NJ. 

Sadly, they postponed Mom's surgery again... when they were prepping her for the surgery at the hospital on Wednesday morning at 6AM (*gulp!*), she had a mini-heart attack (her AFib went nuts and her heart rate shot to 170) so they stopped what they were doing immediately.  They had only gotten as far as inserting her IV and she has no fear of needles or anything, so they don't know what caused it (plus she was totally chill going into surgery), but we suspect it was because they told her not to take ANYTHING (not even meds) by mouth the morning of surgery, so she didn't take her heart medication. 

This is now the 3rd time her knee surgery was canceled. So we're really disappointed... but better safe than sorry. Per the hospital's orders, we went to her cardiologist immediately from the hospital who gave her a monitor to wear and also did a meds adjustment, hopefully she can try for a 4th time soon.  Man. 

Her cardiologist was really irritated that she wasn't allowed to take her heart medication that morning with a tiny sip of water, but that's what you get when you only see one doctor at a time, I guess.

I don't think she realizes how unhealthy she is... rampant diabetes, emphysema, COPD, congestive heart failure, AFib, blah blah blah... an anesthesiologist would be crazy to try to put her out.  Hell, when she had her hysterectomy they gave her an epidural because they knew it was too dangerous to knock her out, and that was 6 years ago when she was healthier. 

Anyhoo, we wound up staying in NJ for the full duration even though she didn't get chopped up... I could tell my dad just kinda needed us there.  

When we were in the waiting room on the morning of surgery and the nurse came out to tell us there were complications, Dad was pretty much trying to wrap his head around Mom dying. It was awful. 

(I'm too tired now as it's 2:54am, but remind me to tell you about Jerry.)

Hi!

We are back from Burning Man and had a lovely time and are very excited to go again next year.  Lots to report, and a full writeup will likely be coming soonish.

But in the meantime... I have not had a chance to read OPW since right before we left... Say August 24th or so.  I will start reading what y'all wrote and getting caught up... but if I missed anything huge while we were gone, please lemme know!  :)

We are en route to my folks' house today where we'll be until Saturday morning. My mom is having knee surgery tomorrow-- she was supposed to have it done before Burning Man but when she showed up to the surgi-center the morning of her surgery, the anesthesiologist said, "I had no idea you had emphysema and AFib and COPD and all these other risk factors... I don't have the equipment to keep you alive here. We have to reschedule you so we can operate in a real hospital and not an outpatient surgi-center like this."  So tomorrow's the day. I'm praying she gets the relief she's been needing, poor thing.

We then have a wedding to attend Saturday afternoon back here in DE.  We fly to Arizona a few days later on Wednesday the 19th for a week to help my friend Jeff figure his life and house out since his wife (and my good friend) Debbie passed away last month... man. 

I've got a bunch of work travel scheduled between now and early December, so when it rains, it pours travel-wise.

Ok, imma get crackin'.

Hope everyone's rockin' in the free-ish world.

There's a difference between being a proud small business where you're not tied to big dumb corporate rules so you can be flexible and agile, and being so small that you still have a single AOL email address on your website.

I want to support the small guy, but if they still use AOL, how can I be confident that my credit card info is secure in their office?

This one local place sells kitchen appliances. They have cutesy commercials featuring the owner's two small boys. "I'm Cameron!" "And I'm Gavin!" "And if you have trouble, call us and we'll make sure it gets handled RIGHT!"  I wonder how creepy it would be if I called up the store asking to speak to Cameron or Gavin to complain about a bill or a customer service issue. They would call Child Protective Services in 5 minutes. And what the fuck does that say about their family dynamic (or Dad's business acumen) that a 7 year old is their accountable executive in charge of customer satisfaction?!

Anyway.

We need a new washer/dryer. The one I have currently is the set that came with the house. I would love to get a set of stackables, and then put a shelf where the dryer currently is.  The washer/dryer used to be in the basement, but my house's previous owners brought them to the main floor of the house, taking up the hall linen closet with the washer/dryer. So I'd love to reclaim some of that closet space since I currently have none whatsoever, unless you count bedroom closets.

I heard a thing on the radio this morning about how small businesses should consider buying "CyberInsurance" in addition to general liability insurance and worker's comp, because small businesses are more vulnerable to cyberattacks.  Really? I know of a zillion huge corporations that were brought down by the ransomware viruses and no small businesses that I use were hit. But maybe that's because large businesses have a higher percentage of dumb people who surf the web at work, clicking on shit they oughtn't... and granted, I'm a small (vaguely tech-related) company, so maybe the percentage of employees who work for my company who click on dumb shit is 0%. 

But I figure Cameron and Gavin (or their mom) click on dumb shit pretty often, so they probably need CyberInsurance. 

The only people who use the term "cyber" are people who shouldn't.

In other news, we spent this past weekend (Saturday through Tuesday) at my folks' place. We hadn't seen them since Christmas, which is waaaaay too long. My mom tore a muscle in her right shoulder, so in addition to her back and her legs being in constant pain, let's add her right shoulder to the laundry list.  My dad has days where he's very weak for no discernible reason, so we needed to go up there and just help them out a bit. They felt so awful that they decided to cancel Easter dinner because my mom couldn't cook and my dad couldn't clean the house, and they both felt that having a house full of people would be too much.

So we offered to come up and do all of the cooking/cleaning, so now Easter is back on. 

We're in the car now heading back up there. We'll be there for a few days. I'm so excited it's finally starting to get warm... this fucking winter might FINALLY be behind us.

I hope everyone has a fabulous Easter, Passover, or April Fool's. :-)

Christmas

Had an especially lovely Christmas up at Chez ElderKnapp. I don't know if it's because my brother's kids are older now or what, but it was just really fun, funny, dorky, kind, playful, and full of love. I feel very lucky. Matt and I got up there late on Christmas Eve, and we came home later on the 27th. 

I'm sad for my poor mom... everything just hurts her so much, and because she's on so many medications for other things, she's not allowed to take NSAIDs (Advil, Aleve, aspirin) -- so she's limited to Tylenol, which notoriously does nothing for my mom and those of us who take after her side of the family. So she just HURTS. She really tries to be a trooper (trouper?) and smile through it all, but it really takes its toll and it's heartbreaking. I can't imagine living in that much pain... and it SUCKS that one friggin' Aleve fixes it perfectly for 12 hours, but she can't even take that. Man. I keep asking her to beg her doctor for something, but naturally as soon as you say "pain" to a doctor they think you're shooting heroin or something idiotic. Like, can't they reduce the amount of blood thinner she's on so she can take one miserable Aleve? I don't get it. 

Phish in NYC

Friday the 29th Matt and I, along with BT and KT went to NYC to see Phish. It was BT's 93-millionth Phish show, KT's 4th, Matt's 2nd, and my first Phish show. The crowd was absolutely awesome-- so friendly with a kind, inviting, Burner vibe. Everyone was baked or tripping and the guards were lenient and friendly, which was refreshing, since nobody was hurting anyone/anything. We sat in section 115 which had a great view. The floor is general admission and people aparently line up very very early to get a good spot on the floor. From our view above the floor, we were all super-impressed with how everyone on the floor respected each others' space. Nobody pushed, nobody crowded or shoved. It just seemed great. 

Some guy who calls himself Malacoid greeted us when we got to our seats, and he greeted everyone else as they filled in. He introduced us all to each other, and after about 30 minutes we were all buddies. This guy Ryan (who was a long-haired, bearded Dave Grohl) looked like he needed one of my blinkie burner lights, so I gave it to him and he acted like I gave him a million dollars. It was great. 

Phish played from 8:15-10pm, and then played a second set from maybe 10:30-11:45. What amazing musicians! It was a pleasure and I'd love to go back. We slept in NYC (I booked two hotel rooms) and it felt great to have a comfy place to crash that night instead of driving home. FTN.

New Years Eve

New Years Eve was either going to be spent in NYC or spent quietly at home doing nothing... and then at the last minute it turned into a very small gathering (just 7 of us). Matt made dinner, we played Cards Against Humanity, and everyone went home around 1:15ish. We were absolutely maxxed out at 7 people (my house simply cannot hold more than 7) and it worked out fine. I was also happy to see all of the neat events happening around Wilmington this year. 

Phone Blather (BlackBerry stuff)

Anyway, I just got a notice that my beloved Blackberry Priv (it runs Android, so please stop making 2006 jokes about my Blackberry) will no longer receive updates from Verizon or Google as of 12/31/17, so it is officially end of life... which is some serious bullshit considering I bought it on the day it came out on March 4th 2016. Really? A $750 phone (yes, I really paid $750) gets barely two years of support?! Insane, man. Seriously.

Anyway anyway, over the last two weeks or so, I noticed that the micro-USB charging port has been getting a little wonky... like needing some wiggling, or needing to be positioned juuuuuust riiiiiight to get a good charge. This never ends well... and as of yesterday, the port is now completely dead. I'm sure it just became unsoldered as these things do, and if I had a T3 screwdriver I feel confident in my ability to take it apart, re-solder the connection, and move on with my life. Alas, I lack the right tools right now. (Gonna order them from Amazon shortly.) Anyway, as you can imagine, yesterday my battery drained completely, and now I officially have no way to charge my phone... which means I was phoneless all day yesterday. I don't get paid for a few more weeks, so I can't really afford a new phone right now (and even if I could afford it, what would I buy? I haven't even been thinking about new phones so I don't really even know what's out there. And something tells me that my physical-keyboard options are pretty damn slim).

So, late last night I fired up one of my three ancient Droid4s that I had laying around, but they all use an old-style SIM card, so I couldn't pull my BlackBerry SIM card and plonk it into my Droid4 and have it just work. (Besides, my Droid 4 is SO damn laggy, and it was horribly laggy in 2015, so in 2018 it is basically unusable.) And then I remembered... wait a second... My Blackberry Priv has wireless charging! I've never used it because I don't own a wireless charging station, but WHEEE! Here's a $30 fix for a $750 problem. And because I have the best boyfriend ever, while I was sleeping this morning, Matt woke up and went to Best Buy and bought me a wireless charging pad, so when I woke up, he was handing me a Qi charger that I got set up in 3 seconds and YAAAAAY, my phone is slowly coming back to life. I actually cried when I saw it charging up. It was like hearing your friend was in a horrible accident and then finding out he's OK.

So, what have we learned?
1) I can toss my Droid 4s now, because they're unusuable now, even as a backup. (But man, I missed that big-ass keyboard.)
2) My BlackBerry Priv has wireless charging and it works great... and I can use this charging pad for pretty much whatever device I wind up buying next.
3) I need to start shopping for a new phone, because my Priv is officially not going to get any security updates anymore, so if I wanna be a secure little technology consumer, I need to have a device that is still being supported. 
4) Verizon can eat a bag of dicks for selling a device and only offering support for not even two years. (I acknowledge it may not be Verizon's decision to stop pushing updates... it's probably Google's... but still. F Y'ALL.)


As of right now, my phone options seem to be:
1) A Blackberry KeyOne. The only crappy thing about that is the keyboard is visible/exposed all the time, so ass-dialing could be a problem with that device. (My Priv's keyboard hid away nicely.)
2) A Moto Z, which is supposed to be an open platform for people to design various cool mods for it. Some neat guys developed a super-sexy landscape keyboard mod for it that has its own battery, but that keyboard mod doesn't ship until the spring. 
3) A Samsung Galaxy S8, which has a nifty keyboard attachment for use in portrait-mode.

I dunno. I'm gonna see which phone of those three has the most horsepower and which one will likely be around the longest and go for that one.

[update] I'm gonna get a Blackberry KeyOne. I just watched 47,000 reviews and comparison videos by unbiased reviewers online, and even people who initially scoffed at a BlackBerry were ALLLLL about it by the end. So sign me the hell up. Two days of battery life is pretty awesome, too.


Lastly: 

I caught the plague that everyone else had. I thought I had caught it a few weeks ago, but I managed to fight it off with megadoses of vitamins... but now it has officially got me in its grips. I have yellow and green stuff coming out of my sinuses that I could really do without. We have a gig on Friday and I hope I'm OK, since we're headlining. I have NO voice, and it is excruciating to speak. Ugh ugh ugh.

It's supposedly gonna snow so I'm gonna go set up my snowcam. okbye.